Normally pale with blue lips during seizures
Sunday, September 18, 2011
And we wait...
Since insurance gave us the go ahead for the SCN1A testing....I will wait another 4-5 weeks for the results. No seizures at all this past week....a big hallelujah to whoever answers our prayers. I hope more parents will reach out and tell their stories....I know how frustrating it is and it helps to have someone to talk to.
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My son had a seizure last night :( It was pretty controlled for about 3 weeks and now it's slowly starting back up again. He also developed a rash from his meds he is on, and it can lead to a serious skin disease so out of fear for that i stopped his meds and the rash went away so i am waiting on his doctors to call back. It's so stressful and hard to see him our little guys go through this. I hope you find some answers soon for your little man!
ReplyDeleteConner had one this morning, we have never had a skin rash though from any medication. I hope your doctor calls back, will say a prayer for speedy medical advice and a relief of seizures
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