A year later

     So technically it's been over a year since the first seizure. Conner was a healthy baby...until around 13 months old. I was on the way into our local Dillon's and I was holding Conner. Shane, our 4 year old, was by me playing and talking to Conner. The next thing I knew Conner was leaning backwards in my arms, pale and blue around the mouth. I rushed him to ER and was told he was dehydrated. Three days later, on a Sunday, my husband witnessed Conner have a spell in the car seat. I believe he said something to the effects of " dammit" and drove my van to the hospital like it was on a nascar track. Conner was admitted to the hospital for "syncope".  I believe we were dismissed three days later, and sure enough he had more "blue" spells. Some in the car and others while being held.
     I finally called the ambulance and he was rushed to the hospital again. By the time he got there he was fine, and we were dismissed. We didn't even make it to the car and he had another one. Finally a doctor seen him have one, and we were taken by ambulance to PICU three hours away.
     So here we are almost 18 months later, and 113 seizures later.  Thousands of hours spent online, on the phone, and at the doctors. I can't even begin to explain how many test Conner has had done. I will leave that for another post as maybe our story will help someone else. We get asked all of the time...how do you do it, handle the seizures? My answer is you don't handle the seizures, they handle you. When you watch your child turn blue, and become unresponsive it literally takes your breath away. Your chest tightens and you pray for that moment to stop and for your loved one to be OK. You can't plan your life around these moments but you have to be prepared for them. Until next time....